INTRODUCTION
Of all of the types of personal data, human genetic data is one of the most sensitive, constituting both a ‘unique identifier and a person’s book of life’. Accordingly, the sharing of genetic data – and especially genomic data, the complete sequence of person’s genetic makeup – remains legally restricted in various ways. Advances in genomic sequencing and secure computing environments, however, have opened avenues towards, and increased demand for, easy and accessible genomic data-sharing. One approach in particular – a novel system, described here, that sequesters genomic data within a secure computing environment—seems to be an especially viable approach due to the recent availability of secure computing environments on smartphones. Whether such an approach satisfies international data privacy laws, or whether users would adopt the technology if further developed, requires careful analysis of the technical features of computationally secure genomic data as set against current privacy regimes …
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Jacob S Sherkow, A sociotechnical approach to genomic data privacy: a comparative analysis, International Data Privacy Law. Published: 17 October 2025.
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