INTRODUCTION
Sharing genomic data promises great benefits for health research as well as clinical diagnoses and management. However, appropriate sharing is reliant upon privacy concerns being effectively addressed. In Australia, the first step toward understanding the protection of genomic data under federal law (specifically the Australian Privacy Act 1988 (Cth) (Privacy Act)) is understanding when genomic data are protected by that Act. The Privacy Act covers, inter alia, commonwealth government agencies and private sector health service providers. Collection, use, and disclosure of data by such entities are, however, only regulated by the Act in so far as the data themselves also fall within the material scope of the legislation. This article considers the relationship between the term ‘genomic data’, as it might be used in scientific (or lay) conversation, and the concept of ‘genetic information’ provided by law …
Minna Paltiel, Mark Taylor and Ainsley Newson, Protection of genomic data and the Australian Privacy Act: when are genomic data ‘personal information’?, International Data Privacy Law, volume 13, issue 1, February 2023, pages 47-62. Published: 1 February 2023.
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